Tuesday, 29 November 2011

Time for some honesty

I often say I am okay-ish. That is on a good day. The truth is that I am not okay. I have not been okay for over 18 months. I struggle to get out of the house unless it is essential. That's if I have an appointment or I need to do something important. I use on-line shopping to avoid running out of food. My sleep is very disturbed. I was relying on zopiclone to get a reasonable night's sleep and even that began to be less effective. I now rely on Vallium to take away the anxiety that takes over most days. I don't like to rely on medication to survive. I take enough medications as it is. I have no problem taking the extra medications to get me through a few weeks. I don't want them to become part of my life. My typical day is as follows. I usually feel better by the evening and take my evening meds. I turn into bed at 10pm or maybe a bit earlier. I feel quite okay at this time. I have a very restless night and usually wake at about 1am. I toss and turn through the night and finally "wake up" at 5-6am. I usually dream heavily and feel more tired than when I went to bed. When I wake up, it is rare that I can just get up and start my day. I usually have a degree of anxiety that varies from mild to severe. I toss and turn, and it can take up to an hour for me to get out of bed. It is at this time that I can get dark thoughts of various degrees. I eventually get up and about, turn on my lifeline (my computer), make coffee and have breakfast. My mood usually lifts over the morning, especially if I have taken some vallium. The vallium makes my mornings a lot more bearable. I usually do not get out of the house unless I need to attend an appointment with doctor, cpn or pick up medications. I am quite aware that I need to get out more and to get more active. This has not changed in the last two years. My cpn is helping me to find resources that could help. It will not help to say "Pull yourself together", the usual advice to someone who is depressed. I don't have any solutions. If I did, I wouldn't feel so lost, scared and hopeless in various degrees. It is very frustrating being clearly able but apparently locked up in some terrible inertia. I appreciate support from all on-line friends but I need help from people I can actually see in person. Isolation leads to isolation. If I had cancer or a life-threatening disease, it would be different. I would suggest that bipolar disorder is life threatening, given the amazingly high suicide rate. The difference is that bipolar sufferers are often left alone in the community, having to cope for themselves and fight for DLA benefits ... I can't blame lack of money for my inactivity but it is a factor while I live on savings. The government love their low interest rates but they don't consider people who live off savings. They say it benefits people with jobs, house and LIVES... (sorry for the burst of UK politics) Thanks for reading, Clive

1 comment:

  1. Thinking of you in Michigan, USA Clive. I work as a psychiatric nurse at a crisis inpatient facility. I hear what you have described from our clients. I do wish I could be your in-person live help. Keep writing...I'm listening. ~L


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